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One of the gifts of the internet is the ability to gain access to information -- particularly medical information -- that was previously hidden away in erudite journals and medical libraries. Although the information is now accessible, it is still hard to find and sometimes to understand. The sites on this page can serve as an introduction to the world of medical information for families of children with disabilities. For more information about specific disabilities, consult the Special Disabilities page of this website.
Although not the most informative of sites, the AAP website is a good place to check for current news and medical research in the field of pediatrics. The AAP also hosts the website of National Center of Medical Home Initiatives for Children with Special Needs, which provides resources and information regarding the Medical Home concept.
The American Medical Association site hosts a database to enable you to find information about physicians and hospitals. The site also provides information on various diseases, disorders, health strategies and therapies via its Medical Library page.
A good, general informational site on health issues, developed by the US Department of Health and Human Services. Search their database for specific information or follow links.
The Health Resources and Services Administration is part of the U.S. Department of Health and Human Services. One of its key programs is Maternal and Child Health. This site contains links to over 350 MCH publications.
To access a series of short videos in English and Spanish on preventing errors in your child's health care (The Basics, Going to the Hospital, Having an Operation, Lab & Medical tests, and Taking Medicines Safely),
The 100% Campaign is a collaborative effort of The Children's Partnership, Children Now, and Children's Defense Fund-California. Since 1998, these three leading children's advocacy organizations have worked together to ensure that all of California's children gain access to affordable, comprehensive health coverage. Not only does health coverage improve children's well-being and help them reach their potential in school, investment in comprehensive health coverage for children is cost-effective by promoting access to early, less expensive preventative care and treatment.
Another general site, MD Choice contains links to health information and to medical and drug databases.
Medicine Online contains a good introductory medical dictionary and provides a database where you can search for a physician, hospital or medical supply vendor.
This is the site to go for ease of use and access to an ocean of health information. It includes links to drug information and medical dictionaries, to provider information and to medical databases.
No search for health information can be complete without a visit to the National Institutes of Health. You may feel overwhelmed, but it is certainly worthwhile to acquaint oneself with the NIH and its many components. There is an encyclopedia worth of information in their on-line publications, too. Some of the publications are available in Spanish.
This series of five modules is designed to provide oral health professionals with information to help ensure that young children with special health care needs have access to health promotion and disease prevention services that address their unique oral health needs in a comprehensive, family-centered, and community-based manner.
Infotrieve is a "research portal," which provides access to several medical databases. You may have to pay for some of this information.
Designed by a Canadian pediatrician, Dr. Alan Gandy, this site provides links to over 550 childhood diseases and disorders. It is arranged alphabetically and is easy to use. The information produced is on the technical side.
PubMed is a service of the National Library of Medicine. It provides the user with access to citations to thousands of articles from medical journals. Please note: these are citations only, not full text articles. It is an invaluable resource.
Families have many concerns about medications prescribed for their children. The three sites below are clear and easy to navigate and can help in a search for information about pharmaceuticals.
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The resources on these pages are for your information. These listings are not necessarily comprehensive, nor are they an endorsement. If you find that any information is incorrect, if you would like to offer feedback or if you know of additional resources that may be helpful to include, please contact us.
This page was last updated July 27, 2011 .
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