Save the Date!
2014 Information and Resource Conference
Saturday, March 22, 2014
8:30am - 3:30pm
John O'Connell High School
New this Year: Registration opens Monday, February 10 online and by phone
A FREE conference for families of children with disabilities, the professionals who work with them, and the community at large. Stay tuned for more information!
Is your nonprofit, agency, or company interested in exhibiting at the conference? Download the the invitation letter [pdf] and exhibitor registration form [pdf] for more information about how to participate.
If you have any questions or for more information about exhibiting at the IRC, please contact Nora Martin (firstname.lastname@example.org, 415-282-7494). Thank you!
WINTER 2013-2014 SPECIAL EVENTS
For all Support for Families special events, call us to register: 415-920-5040
First Movie Night of 2014:
Friday, January 24th, 2014
Support for Families, 1663 Mission St., San Francisco 94103
Our popular Movie Nights is coming back in Winter 2014! Families and children are invited to watch a movie, munch on yummy snacks, and enjoy the playroom here at our main office.
Movie Nights are held monthly on Fridays in January to June 2014 from 5:30pm-7:30pm. Please check back on our upcoming events page or call 415-920-5040 for upcoming dates and movie titles.
Family Access Day at the Contemporary Jewish Museum
Sunday, February 23rd, 2014
736 Mission Street, San Francisco, CA 94103
Children and families with disabilities are invited for an inclusive and multisensory experience at the Museum. This fun-filled day will feature a family gallery tour of Frog and Toad and the World of Arnold Lobel, a dance workshop by AXIS Dance Company, a “studio of the senses” art workshop, and a special screening of a claymation film inspired by the characters in Frog and Toad. Presented in partnership with the Contemporary Jewish Museum, Support for Families, INCLUDE, a partnership of Jewish LearningWorks and the Jewish Community Federation and Endowment Fund, and Rosh Pina.
For more information about this event, please contact email@example.com or 415-655 7856. For information on how to register, please check our upcoming events page or call 415-920-5040.
FALL EVENT RECAPS
Monster Mash Halloween Party at Aquarium of the Bay
Click here to see photos on Facebook
(you don't need a Facebook account to see the photos!)
Our Annual "Monster Mash" Halloween Party at The Aquarium of the Bay was a huge
success! We had 326 attendees this year, compared to 213 last year, and 48 volunteers, compared to 28 last year! Families had a great time making monster masks, watching the magic show, seeing the otter exhibit, and so much more. Thanks to our partner Aquarium of the Bay, our volunteers, our staff, and our attendees for making it happen!
Wine + Design 2013
Click here to see photos courtesy of Mark & Tracy Photography
Click here to watch the "Our Impact" video shown at the event
Click here to see our list of sponsors and supporters
The Wine+Design 2013 Auction and Gala on October 4 was SFCD’s most successful fundraiser to date, netting more than $150,000 to support our programs and services!
The event honored San Francisco Recreation and Park Department for its access and inclusion services for children and adults with special needs. Auctioneer and host Chad Carvey kept the bids coming while Denon & Doyle DJs served up an irresistible mix of musical styles.
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The Flu and Children with Neurologic Conditions
Excerpts taken from the Family Voices and the National Center on Family Professional Partnerships Website
Children of any age with neurologic conditions are more likely to become very sick if they get the flu. Complications may vary and can include pneumonia and even death. Neurologic conditions can include:
- Disorders of the brain and spinal cord (for example: spina bifida and hydrocephalus)
- Cerebral palsy
- Epilepsy (seizure disorders)
- Intellectual disability
- Moderate to severe developmental delay
- Muscular dystrophy
- Spinal cord injury
Some children with neurologic conditions may have trouble with muscle function, lung function or difficulty coughing, swallowing, or clearing fluids from their airways. These problems can make flu symptoms worse.
Vaccination is the Best Protection against Flu: The best way to prevent flu is to get a flu vaccine every year. It is important for children with neurologic conditions to be vaccinated, since they are at a high risk of experiencing complications if they become ill from flu.
Additionally, close contacts of these children, such as parents, siblings, household members, and caregivers, like babysitters, doctors, nurses, and teachers, should also get vaccinated to keep from getting sick or spreading the flu to these vulnerable children or other people at high risk of serious flu complications.
Children with neurologic conditions should only get the flu shot, not the nasal spray vaccine. Flu shots are approved for use in children aged 6 months and older, including healthy children and children with chronic health problems. Children younger than 2 years old and children with chronic health problems should not get the nasal spray vaccine.
Talk with your health care provider about getting a flu vaccine for you and your child. Some children will need more than one dose of the flu vaccine to be protected. Your health care provider can determine the number of doses your child needs to be protected against flu.
Cost: If your child is covered by MediCal, the flu shot should be covered. Most private health insurance plans cover the cost of a flu shot as a preventative health measure. Another resource is Vaccines for Children, a federal program, which provides vaccines at no cost to children who might not otherwise be vaccinated because of inability to pay. If you do pay out-of-pocket, you can expect to pay from $15 to $30.
Treating the Flu in Children with Neurologic Conditions: Any high risk person should get prompt medical attention if they have flu symptoms. If your child with a neurologic condition develops fever or flu symptoms, call your doctor or take them to the doctor right away. CDC recommends that doctors treat flu illness promptly in high risk people who have underlying medical conditions with antiviral drugs. Antiviral drugs are prescription medicines that fight against the flu.
If you child has flu, keep them at home, except for doctor visits, for at least 24 hours after their fever is gone without the use of fever-reducing medicines. You should also make sure your child gets plenty of rest and clear fluids (water, broth, sports drinks, etc.). Your health care provider may also recommend fever-reducing medicines* based on your child’s age.
*Children younger than 4 years of age should not be given over-the-counter medicines without approval from a health care provider. Also aspirin should not be given to any child younger than 18 years old who has the flu.
Tips to Stay Healthy: In addition to getting vaccinated yearly, children with neurologic conditions and their families should practice good health habits to help protect themselves and others against the flu. These may include:
- You and your child should avoid close contact with people who are sick.
- Take action to help control the spread of germs (like flu):
- Make sure that your child’s chronic health condition is under the best medical control possible.
- Have a plan for how to take care of your child in case they become sick with the flu.
For more information about the flu and children/youth with special health care needs please visit the FVCA website at www.familyvoicesofca.org
Flu and Health Resources for Families and Professionals
- Centers for Disease Control and Prevention: www.cdc.gov/flu/; 1-800-CDC-INFO
- Complex Child E-Magazine: http://articles. complexchild.com/nov2010/00246.html
- Family Voices of California (FVCA): www.familyvoicesofca.org
- Family Voices National: www.familyvoices.org; 888- 835-5669
- Flu.gov: www.flu.gov
- Lucile Packard Foundation of Children's Health: lpfch-cshcn.org; 650-497-8365
- Muscular Dystrophy Association (MDA): www. mdausa.org/flu-season-support
- National Center for Family Professional Partnerships: www.fv-ncfpp.org/activities/flu/flufacts; 888-835-5669
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Affordable Care Act (ACA)/Covered California Resources
Covered California (www.coveredca.com; 800-300-1506) is a new marketplace established for California under the federal Patient Protection and Affordable Care Act [Obamacare] where "you and your family will be able to compare health coverage options and choose the one that best fits your needs and budget" (coveredca.com). Helpful resources around the ACA and Covered California are below:
Individual & Family Enrollment in San Francisco
Office of the Mayor, City & County of San Francisco & SF Benefits Net
SF Benefits Net: 855-355-5757; 1440 Harrison St, SF
Find out what health coverage you and your family are eligible for in San Francisco. Includes chart comparing Medi-Cal, Covered CA, and Healthy San Francisco.
The ACA and You: A User’s Guide
California Health Report
Confused about the health care reform law and how it will affect you? Go here for more information.
The ACA: What Autism Families Need to Know
The Autism Health Insurance Project
This local Bay Area agency has helpful tips and explanations for how the ACA will affect autism families.
How Will the ACA Affect People With Disabilities?
Thinking Person's Guide to Autism
The Autistic Self-Advocacy Network's Ari Ne'eman speaks about specific advantages, opportunities, and sticking points of the ACA for People with Disabilities. This article can be helpful to people with many types of disabilities.
Medicaid Expansion Provision of the ACA
The Catalyst Center, Boston U. School of Public Health
The Catalyst Center is a national center dedicated to improving health care coverage and financing for Children and Youth with Special Health Care Needs (CYSHCN).
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10 Things to Know about Transition Planning
- Transition services are intended to prepare students to move from the world of school to the world of adulthood.
- Transition planning begins during high school at the latest.
- IDEA [Individuals with Disabilities Education Act] requires that transition planning start by the time the student reaches age 16.
- Transition planning may start earlier (when the student is younger than 16) if the IEP team decides it would be appropriate to do so.
- Transition planning takes place as part of developing the student’s Individualized Education Program (IEP).
- The IEP team (which includes the student and the parents) develops the transition plan.
- The student must be invited to any IEP meeting where postsecondary goals and transition services needed to reach those goals will be considered.
- In transition planning, the IEP team considers areas such as postsecondary education or vocational training, employment, independent living, and community participation.
- Transition services must be a coordinated set of activities oriented toward producing results.
- Transition services are based on the student’s needs and must take into account his or her preferences and interests.
Excerpt taken from "Transition to Adulthood", National Dissemination Center for Children with Disabilities (NICHCY), September 2010. To read the whole article, visit: www.nichcy.org/schoolage/transitionadult
To learn more about Transition to Adulthood, consider taking our Transition to Adulthood Clinic, held every 4th Thursday of the month (except November and December).
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Parent Mentor Training Updates
Parent Mentor Training – Special Education Series
Starting in September 2007, the Special Education Series has provided our Parent Mentors information and resources to support mentees, as well as themselves, regarding areas of Special Education. The Parent Mentor Program (PMP) is now in its 6th year of providing this Series to current and upcoming Parent Mentors under the PMP. The current Series started on September 17th for the English speaking families and on September 18th for the Spanish speaking families. The Series covers various areas including Basic Rights and Responsibilities, Evaluations and Assessments, How to prepare for an IEP, and more. Materials are used to help our Mentors get a better understanding of the Special Education arena.
The Special Education Series takes a break in December. At that time we have our Parent to Parent (P2P) portion of our training. The P2P will be held on December 7th for English speaking mentors and December 11th & 18th for Spanish speaking mentors. During this training we will talk about communication skills, active listening and what it means to be a Support for Families Parent Mentor.
Our volunteer Mentors are an integral part of our organization and participate in various activities that include Parent Panels at universities and colleges, community outreach at city and organization events, and sharing their stories with college interns or the media. This training will also help Mentors to strengthen their conversation skills when representing their own children.
New Parent Mentors are invited to attend, as well as the current group of recently trained mentors.
Interested in becoming a Parent Mentor?
If you are interested in becoming a volunteer Parent Mentor, please contact us. We are currently registering parents for the P2P in December. For information or to register, please contact a PMP Coordinator:
For information or to register, please contact:
Joan E. Selby (English)
Phone: (415) 282-7494, Ext. 113
JoAnna Van Brusselen (Spanish)
Phone: (415) 282-7494, Ext. 141
Note: Registration through Joan (English) or JoAnna (Spanish) is required. Thank you.
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Play Ball! in Spring '14
by Linda Leonard
Kids six and over with physical or cognitive challenges are invited to join the SF Giants Challenger League! From March to June, team members and their families get together to play and provide fan spirit for a non-competitive game of baseball on Sunday afternoons.
Our son Drake has been a player on the Challenger League for the past three seasons. On Sundays, he suits up in uniform, and we venture out to play with all the great friends he’s made! Games take place throughout the Bay Area, with home fields at McCovey Cove or Treasure Island.
Together, the kids practice essential baseball skills, but more importantly, they learn how to support each other in a team effort. We have noticed a greatly improved sense of self-esteem in Drake as a result of joining this league, as the games are the only time he can participate in a group sport and truly feel supported. In addition, as a regular family fan in the stands, I can attest that we have met so many incredible families who have built a camaraderie that extends well beyond the baseball field.
Highlights of this past season include hitting the ball—both from the tee and by pitch, running or rolling around the bases and cruising into home plate, kicking up clouds of dirt in the infield, chasing a runaway ball into the outfield, lying in the grass and soaking up the afternoon sun, playing with friends in the dugout, having family members cheer for our team, petting our doggy mascot, having a hotdog after the game, meeting and practicing with coaches and players from the MLB Giants, attending a game at AT&T Park, and a great year-end Jamboree tournament and picnic!
Registration is currently underway at www.sfll.org. For additional information, or for contacts of other Bay Area Challenger Teams, please contact Peter Straus at 415-864-2939 or email firstname.lastname@example.org. We would love you to join our team!
More Recreation Resources for Kids with Disabilities This Winter/Spring in San Francisco
For more, visit our resource guide online or call our Warmline (415-920-5040).
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Special Education Services - Assignments and Contact Information (8/20/13)
Download PDF Version [pdf]
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Reviews from the Joan Cassel Memorial Library
Guns A’ Blazing: How Parents of Children on the Autism Spectrum and Schools Can Work Together- Without a Shot Being Fired
by Jeffrey Cohen
The author is a writer, teacher and more importantly, the father of a son with Asperger syndrome. He uses eye catching chapter titles as in, “The Less Squeaky Wheel Gets the Good Bagels.” He discusses the need to impart on professionals and friends the differences in behavior between what the child won’t do and what the child cannot do. There is a lot of everyday wisdom in this book in how to deal with your child’s school and teachers. It is both a memoir about raising a son with Asperger’s syndrome and about the educational laws and the school ruls that need to be followed to be successful in school. I enjoyed the humor used by the author and everyday language.
Love, Jean: Inspiration for Families Living with Dysfunction of Sensory Integration
by A. Jean Ayres, Philip Erwin and Zoe Mailloux
This is an unusual book, part memoir, part explanation of sensory integration and part explanation of treatments that were developed by the three authors. It is the story of an aunt helping her nephew overcome his sensory problems using techniques in the emerging field of sensory integration therapy. The story is told in letters between the aunt and nephew. Zoe Mailloux, Ms. Ayrve’s first assistant, uses narration to fill in needed details and the history of the field of sensory integration. All three were pioneers in the development of therapies for this condition. The comprehensive table of contents directs the reader, the alphabetical index helps the reader find specific areas and the information about the authors helps the reader understand the reasons for reading the book. It opened my eyes to a therapy often misunderstood.
Read Me Differently
A Film by Sarah Entine
This DVD was previously presented by the film maker at one of our workshops. The DVD is 56 minutes in length and should be watched in one sitting. It tells the story of three generations of family members with learning differences. My family also has three generations of learning problems so I like this DVD a lot. The author explains that the learning differences of dyslexia and ADHD in women were hidden problems and not discussed. She delves into her own relationships with her grandmother, mother, father and various mentors from school days. Her sibling also looks back at the structure of the family and how it was affected by the three members of the family with undiagnosed learning differences. If you have a similar situation in your family this is a DVD for you. It is beautifully filmed with much insight. It is closed captioned with subtitles in English.
Teaching Young Children With Disabilities In Natural Environments, Second Edition
by Mary Jo Noonan and Linda McCormick
The first edition of this book was published in 1993 and advocated early intervention for babies to age 3, using development of the child and the environment of where they were learning to formulate their theories and practices. This is a textbook for use by students of early childhood education and for teachers learning to include the young child with disabilities in their programs. The textbook gives the focus of each chapter ,highlights the importance of each section of the chapter, includes visual aids, a summary, study questions and references. The format includes maximum spacing, clear margins and a little larger than usual print . The content page and indexes are helpful in finding a section to review. The second edition has added more information about inclusion, behavior plans, IEPs, transitions, diversity and culture and autism. I see parents benefiting from many sections of this book. They will be more prepared to communicate with their child’s teacher.
When Your Grandparent Dies: A Child’s Guide to Good Grief
by Victoria Ryan
The holidays are upon us and sometimes after the holidays are over there is a death in the family. The author has written an easy to understand children’s book about the timeline, the organization of events and the different feelings a child might express when someone in the family dies. She portrays a traditional American funeral. It is a good book to use in sections with the children as the feelings and questions need to be addressed. It can be used for a discussion of death of a loved one and the funeral portions may be replaced by talking about your own family’s customs. It does a good job of discussing feelings of loss, grief and blame from a child’s viewpoint.
Toy Library Review
Time Timer 8”
by Time Timer LLC , Cincinnati, OH
This is a new toy for the Toy Lending Library. It is a wonderful large time with a moving red moving disk that shows how much time you have left to complete a task. It can be set for any amount of time up to 60 minutes. It is on as long as the AA battery is installed. It has an audible signal of beep, beep, as well as the moving red disk that counts down the time and disappears when time is up. Since most children have a difficult judging the passage of time, I see so many uses for this item. Check it out and then get your own.
Note the check out period is 30 days, the same as the other library materials!
Reviews by Elaine Butler, Librarian
Each of these books has been personally researched and requested for review purposes by me for introduction to you, the reader.
Support for Families maintains the Joan Cassel Memorial Library which is a lending library for families and professionals, comprised of multi-lingual books, reference materials and media related to children with disabilities and special health care needs. The library is open during regular business hours.
If you have the title or author of a book you’d like to read, please go to our website and do a search. Go to this link and enter the title or author or subject and click search. If we have the item, call us and the librarian will hold the item for you until you can come to the office to pick it up. Try the online catalog or come and browse the shelves by category, new items added weekly.
Visist our library online at: http://www.supportforfamilies.org/library.html
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Support for Families gratefully acknowledges gifts from the following individuals, groups and businesses, received August 1, 2013 through October 31, 2013. We apologize for any omissions or misspellings; please contact us so we can correct our records.
Jane LaPides & Murray Cahen
Dr. Suzanne & Lou Giraudo
Lucile Packard Foundation for Children's Health
Eileen & Nersi Boussina
Andrea & Christopher Dehner
Intani Dental San Francisco
The Allene & Jerome LaPides Foundation
Renee A. Simon
Lynn Fuller & Bill Bivins
Bruce Deming & Jeff Byrne
Emily Chen & Chris Carrera
Nancy & Antonio Corballeta
Juno & Robert Duenas
First Republic Bank
Chantel Fitting, Galine Frye & Fitting
Judy Janec, in memory of Irving & Gloria Schlossberg
Sheila Doyle Kiernan
Jessica Litwin, M.D.
Ann & Jim Meisenheimer
Mission Bowling Club
Myers Urbatsch, P.C.
Paragon Real Estate Group
Physicians Reimbursement Fund, Inc.
Penny Bellamy & Mark Simon
Diana Tang MD and Sonja Huie MD
The Thaler/deChadenedes family, in memory of Ralph Thaler
Brody, Walsh and Brody: Dave, Chris, & Bill
Drs. Lucy & William Crain
Delagnes, Linder & Duey LLP
Patrick J. Donohue
Judy C. Chen & Michael V. Gamboa DDS
The Tax Pros and Mike & Noushi Harrar
Lindsay & Peter Joost
Laura & Eugene Lanzone
Goli Mahdavi & Thomas Lee
Carrie Shi and Albert Lou
Barbara and Garry Marshall
Peggy Barbieri & David Rothman DDS
San Francisco Millwork, Inc.
Antje & Richard Shadoan
Sharp Business Systems
Afra Afsharipour & Diego Valderrama
Jan & Jim Watson
Kathia Zolfagharia, Phoenix Rising Enterprises
raise your paddle donations
Eileen and Nersi Boussina
Steve Winningham and David Caley
Audrey Foster-Barber MD
Audrey Glancy RN
Jill and Curt Rodby
Peggy Barbieri and David Rothman
Lanelle and Michael Santimauro
other wine+design donations
Carmen and Victor Bacigalupi
Matt and Mary Kay Brennan
Judith Schlesinger & Howard Fish
Art and Debra Foosaner
Arlene.and Robert Mathias
Barbara and Robert Scavullo
Sofia and Paul Seregin
Margaret and William Stewart
JoAnn and Frederick Wentker
Ju Chen Yen
auction & inkind donations
Alpha Omega Winery
American Airport Connection
American Conservatory Theater
Aquarium of the Bay
Bay Area Discovery Musuem
Beach Blanket Babylon
Benefit Cosmetics - Chestnut Street
Benefit Cosmetics - Fillmore Street
Berkeley Repertory Theatre
Blue & Gold Fleet
Bluxome Street Winery
Broadway By the Bay
Byington Vineyard & Winery
Cabot Creamery Cooperative
California Parlor Car Tours
California Shakespeare Theater (Cal
Canvas and Cabernet
Carmel Valley Ranch
Carolina Wine Brands
Cartoon Art Museum
Alice B. Cassman
Children's Creativity Museum
City Arts and Lectures
Drs. Lucy and William Crain
Da Capo Wines
Delfina Restaurant Group
Divisadero Touchless Car Wash
Thomas Fallon Photography
Farm Fresh to You
U.S. Senator Dianne Feinstein
Foreign Cinema Restaurant
Fritz Underground Winery
Garden Court Hotel
Gluten Free Grocery
Golden State Warriors
Veronika Gulchin Photography
Indian Valley Golf Club
Jewish Community Center
Joy Joy Nails
Kabuki Springs & Spa
Kathleen M. Welsh, M.D.
LMK Design, Lillian Murphy
Law Offices of Robert B. Ingram
Lovejoy's Tea Room
Mayor Ed Lee
Mary Small Photography
Suzanne McSweeney Designs
Meadowood Napa Valley
Players Sports Grill and Arcade
PRP Wine International
Red and White Fleet
Resort at Squaw Creek
Rock Wall Wine Company
Roosevelt Tamale Parlor
San Francisco 49ers
San Francisco Ballet
San Francisco Linens
San Francisco Symphony
San Francisco Zoo
Sea Glass Fine Art
Seager Gray Gallery
Smart Mom Jewelry
Standard 5 & 10, Ace Hardware
Dr. Lee Strawn
The Laurel Inn
The Murphy Family
The Perish Trust
The Tidy Shoppe
Tin Barn Vineyards
Tower Car Wash
Turley Wine Cellars
Twenty Five Lusk Restaurant
Union Street Goldsmith
Bob Wait/Wait Cellars
Westin San Francisco Market Street
When Modern Was
COMPANIES, BUSINESSES, GROUPS
LightBox Collaborative, in memory of
Franklin Templeton Investments,
matching the gift of Diego Valderrama
Yasmin Firoozabady, in honor of Goli
Monica Flannigan, in honor of Darcy
Tatiana Goldstein, in honor of Emilio
Jeri Hart, in memory of Ann Carr
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