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2008
RESOURCE GUIDE
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Section 3. National Resources (A-J) |
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Agency
Name
& Address |
Contact
Information |
Program
Description |
| Abledata |
Tel: (800) 227-0216 |
Abledata is an electronic database of assistive technology and rehabilitation equipment for children and adults with cognitive, physical and sensory disabilities. Currently listing more than 24,000 products from more than 3000 companies, the database include hi-tech, low-tech, commercially available, one-of-a kind and prototype products and do-it-yourself entries. The Abledata project also produces fact sheets and informed consumer guides on assistive devices. |
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E-mail: abledata@macrointernational.com Web site: www.abledata.com |
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| Ablenet |
Tel:
(800) 322-0956 |
AbleNet designs products for children with severe cognitive and physical disabilities. |
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E-mail: customerservice@ablenetinc.com Web site: www.ablenetinc.com |
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Academic Software, Inc. |
Tel: (859) 552-1020 |
Research and development firm committed to working with and serving individuals with special needs and their families, as well as the professionals who work with them. |
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E-mail: asistaff@acsw.com Web site: www.acsw.com |
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ADH: Academy of Dentistry for the Handicapped |
Tel: (312) 440-2660 |
Part of Federation of Special Care in Dentistry. |
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E-mail: N/A Web site: N/A |
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| Adaptations by Adrian |
Tel: (800) 831-2577 |
Designs and manufactures clothing for children and young adults with special needs. |
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E-mail: adrians1@sbcglobal.net Web site: www.adaptationsbyadrian.com/ |
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| AHEAD |
Tel: (704) 947-7779 |
Premiere professional association committed to full participation of persons with disability. |
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E-mail: Check website Web site: www.ahead.org/ |
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Alliance for Technology Access |
Tel: (800) 455-7970 TDD N/A Fax: (415) 455-0654 |
A network of community-based resource centers dedicated to providing information and support services to children and adults with disabilities, and increasing their use of standard, assistive and information technologies. |
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E-mail: atainfo@ataccess.org Web site: www.ataccess.org |
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Alliance of Genetic Support Groups |
Tel:
(800) 336-GENE |
Alliance is a bridge between consumers and providers of genetic services. A coalition of consumers, professionals and genetic support groups, the Alliance provides a national forum to promote the needs and interest of children, adults and families living with, and at risk for, genetic conditions. |
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E-mail: info@geneticalliance.org Web site: www.geneticalliance.org |
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American Speech Language Hearing Association |
Tel: (800) 638-8255 |
The American Speech-Language-Hearing Association is the professional, credentialing, and scientific organization for audiologists and speech-language disorders and referrals to speech-language pathologists and audiologists, the professionals who treat communication disorders. |
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E-mail: actioncenter@asha.org Web site: www.asha.org |
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Angel Flight |
Tel:
(310) 390-2958 |
Angel Flight is a non-profit aviation group of private pilots and non-pilot members who donate their time and provide free air transportation to needy individuals with Health care challenges. Criteria: patients need to be ambulatory, medically stable, financially needy. |
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E-mail:info@angelflight.org Web site:www.angelflight.org |
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The Arc |
Tel: (800) 433-5255 |
The Arc is committed to securing for all people with mental retardation the opportunity to choose and realize their goals of where and how they learn, live, work and play. The Arc is further committed to reducing the incidence and limiting the consequence of mental retardation through education, research, advocacy and support of families, friends and community. |
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E-mail: info@thearc.org Web site: www.thearc.org |
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Autism Society of America |
Tel:
(800) 328-8476 |
Member services include information and referral, Advocate newsletter, bookstore, Fax on Demand information service. |
E-mail: info@autism-society.org Web site: www.autism-society.org |
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Bazelon Center for Mental Health Law |
Tel:
(202) 467-5730 |
Leading national legal advocacy organization representing people with mental illness or mental retardation. |
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E-mail:info@bazelon.org Web site: www.bazelon.org |
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Beach Center on Families & Disability |
Tel:
(785) 864-7600 |
The Beach Center is funded by the National Institute on Disability and Rehabilitation Research, the University of Kansas and private donations to serve as a rehabilitation research and training center. We connect our research, training and dissemination activities to the theme of family empowerment. |
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E-mail: beachcenter@ku.edu Web site: www.beachcenter.org |
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Books Aloud, Inc. |
Tel:
(408) 808-2613 |
Provides free audio book library services nationwide for individuals of all ages who are unable to read printed books on their own, due to physical, visual, or learning disabilities. Verification of disability is required. |
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E-mail:info@booksaloud.org Web site:www.booksaloud.org |
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Books on Tape, Inc. |
Tel:
(800) 626-3333 |
Full length audio books available for rental or purchase. Catalog of 5,000 titles is $5, applied to order. |
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E-mail: N/A Web site: www.booksontape.com |
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Cancer Information Service |
Tel:
(800) 422-6237 |
The Cancer Information Service is a national information and education network dedicated to meeting the information needs of cancer patients and their families, the general public and health professionals. It delivers up-to-date cancer information and makes referrals to local cancer resources and services. |
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E-mail:cancergovstaff@mail.nih.gov Web site: http://cis.nci.nih.gov/ |
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CHADD (Children & Adults with Attention Deficit Disorder) |
Tel:
(800) 233-4050 |
A national organization working for people with attention deficit disorders. |
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E-mail: national@chadd.org Web site: www.chadd.org |
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Closing the Gap |
Tel:
(507) 248-3294 |
Closing the Gap publishes a bimonthly newspaper and sponsors an annual conference on computer technology in special education and rehabilitation. |
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E-mail: info@closingthegap.com Web site: www.closingthegap.com |
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Corporate Angel Network, Inc. (CAN) |
Tel:
(914) 328-1313 |
Corporate Angel Network flies cancer patients to/from recognized cancer centers in the US. Patient must be able to walk on board plane, sit up, and cannot have a life support system on board plane. |
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E-mail: info@corpangelnetwork.org Web site: www.corpanqelnetwork.org |
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Council for Exceptional Children (CEC)/ Educational Resource Information
Center (ERIC) |
Tel:
(888) 232-7733 |
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities. |
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E-mail: service@cec.sped.org Web site: www.cec.sped.org |
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| Disabled Children's Relief Fund (DCRF) |
Tel:
(516) 377-1605 |
The Disabled Children's Relief Fund (DCRF) is a 501 C charity founded in 1990. DCRF provides practical prosthetic devices and rehabilitation equipment to disabled children on the recommendation of hospitals and rehabilitation centers. In addition, DCRF serves as an information center for parents of disabled children. |
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E-mail: N/A Web site:www.dcrf.com |
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| Don Johnston, Inc. |
Tel:
(800) 999-4660 |
Don Johnston Inc. provides computer software solutions for students with disabilities. |
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E-mail: info@donjohnston.com Web site: www.donjohnston.com |
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| Family Voices Inc. |
Tel:
(888) 835-5669 |
Family Voices is a national grassroots network of families and friends speaking on behalf of children with special health care needs. |
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E-mail: kidshealth@familyvoices.org Web site: www.familyvoices.org |
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Imaginart |
Tel:
(512) 448-1840 |
A catalog company that offers augmentative communication and assistive technology supplies. |
E-mail: imagineartaustin@yahoo.com Web site:www.imagineart.net |
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Institute for Health & Disability |
Tel:
(612) 624-3939 |
The Institute for Health & Disability brings together research, training and information dissemination projects and centers dedicated to the study and promotion of the psychological and social well being of children and youth with disabilities and their families. |
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E-mail: instihd@tc.umn.edu Web site: www.peds.umn.edu/Centers/ihd |
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| Institute on Community Integration |
Tel:
(612) 624-6300 |
Institute on Community Integration is a research and training program that provides materials and consultation to service providers, policy makers and families. Rather than providing services directly to consumers, they work with community agencies, organizations and families to improve existing community services. They also have extensive print materials available through their publications office at reasonable or no cost. |
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E-mail:ici@umn.edu Web site:http://ici.umn.edu/ |
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International Dyslexia Association |
Tel:
(800) 222-3123 |
Offers training in language programs and provides publications relating to dyslexia. |
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E-mail: info@interdys.org Web site: www.interdys.org |
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Job Accommodation Network (JAN) |
Tel:
(800) 526- 7234 |
Provides information about job accommodations or the employment section of ADA (Americans with Disabilities Act) through a toll-free telephone line. |
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E-mail:jan@jan.wvu.edu Web site: www.jan.wvu.edu | ||
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The resource list above is for your information; it is not necessarily comprehensive and is not an endorsement of the services offered. If you find that any of the information is incorrect, if you would like to offer any feedback, or if you know of additional resources that may be helpful to include in the future, please let us know. You can call us at (415) 920-5040, e-mail us at info@supportforfamilies.org or write to us c/o Open Gate, 2601 Mission Street, 3rd Floor, San Francisco, CA 94110. Thank you to all the agencies who completed our Request for Information form and thank you as well to community resource databases such as Helplink and the San Francisco Public Library Community Connection for lending valuable assistance. |
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K-Z |
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