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2000
RESOURCE GUIDE
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Section 3.
National Resources (K-Z) |
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Agency
Name
& Address |
Contact
Information |
Program
Description |
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KidAbility |
Tel:
(800) 333-8087 |
Kidability is a specialty store for infants and children with disabilities. They have clothing, toys, shoes, utensils, preemie clothes and bereavement products. |
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E-mail: kidability@aol.com Web site: www.kidability.com |
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Learning Disabilities Association of America |
Tel:
(412) 341-1515 |
LDA is a national non-profit organization providing information and referral to individuals concerning learning disabilities. A membership organization with 500 local chapters throughout the country, they place people in touch with local support groups, help with schools, etc. Free material provided upon request. |
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E-mail: ldanatl@usaor.net Web site: www.ldanatl.org |
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Mayer-Johnson Co |
Tel:
(619) 550-0084 |
Manufacturer of augmentative communication products. |
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E-mail: N/A Web site: www.mayer-johnson.com |
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Miles for Kids in Need |
Tel:
(817) 963-8118 |
Provides air transportation for children needing medical treatment or a wish fulfilled. |
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E-mail: N/A Web site: N/A |
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Mobility International USA |
Tel:
(541) 343-1284 |
Mobility International USA (MIUSA) is a nonprofit organization providing international exchange and leadership development opportunities for people with disabilities. The National Clearinghouse on Disability and Exchange advises exchange programs on how to accommodate participants with disabilities. The Clearinghouse also provides information and referral to disabled individuals interested in international programs. |
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E-mail: info@miusa.org Web site: www.miusa.org |
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National Alliance for the Mentally Ill (NAMI) |
Tel:
(800) 950-6264 |
The National Alliance for the Mentally Ill (NAMI) is a grassroots self-help, support and advocacy organization dedicated to improving the lives of people with severe mental illness. Most NAMI members are individuals and the families and friends of people who suffer from severe illnesses such as schizophrenia, clinical depression, manic depression, panic and obsessive-compulsive disorders. |
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E-mail: helpline@nami.org Web site: www.nami.org |
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National Association of Private Schools for Exceptional Children (NAPSEC)
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Tel:
(202) 408-3338 |
Non-profit association whose mission is to promote excellence in educational opportunities for children with disabilities by enhancing the role of private special education. Provides a Non-public school referral service and publishes a directory. |
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E-mail: napsec@aol.com Web site: www.napsec.com |
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National Association of State Directors of Special Education (NASDSE)
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Tel:
(703) 519-3800 |
NASDSE is a not-for-profit corporation that promotes and supports education programs for students with disabilities. |
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E-mail: N/A Web site: N/A |
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National Center for Learning Disabilities |
Tel:
(888) 575-7373 |
National non-profit organization that offers information and referral, conducts educational programs, raises public awareness of learning disabilities and advocates for improved legislation and services for those with learning disabilities. |
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E-mail: N/A Web site: www.ncld.org |
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National Center for Youth with Disabilities |
Tel:
(612) 626-2134 |
Information, policy and dissemination center for youth with disabilities. |
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E-mail: N/A Web site: www.peds.umn.edu/Centers/ihd/ncyd.html |
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National Coalition on Abuse and Disability |
Tel:
(310) 390-2420 |
Provides quarterly newsletter. Members' work includes or specializes in abuse and neglect of children with disabilities. |
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E-mail: N/A Web site: N/A |
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National Down Syndrome Society |
Tel:
(800) 221-4602 |
NDSS was founded in 1977 with the three-fold mission of education, research and advocacy. They work to increase public awareness about Down syndrome. |
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E-mail: info@ndss.org Web site: www.ndss.org |
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National Fathers' Network (NFN) |
Tel:
(425) 747-4004 |
A national program committed to fathers and their children with chronic illness and developmental disabilities. Services include technical assistance, newsletter, training, and publications. |
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E-mail: jmay@fathersnetwork.org Web site: www.fathersnetwork.org |
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National Foundation of Dentistry for the Handicapped |
Tel:
(800) 366-3331 |
Matches patients with dentists who donate their time. In California, see California Donated Dentistry Services. |
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E-mail: N/A Web site: N/A |
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National Health Information Center (NHIC) |
Tel:
(800) 336-4797 |
Information and referral regarding health issues. |
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E-mail: nhicinfo@health.org Web site: www.health.gov/nhic |
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National Information Center for Children & Youth with Disabilities
(NICHCY) |
Tel:
(800) 695-0285 |
NICHCY is a national information center that provides information on disabilities and disability-related issues for families, educators and other professionals with a special focus on children and youth (birth to age 22). |
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E-mail: nichcy@aed.org Web site: www.nichcy.org |
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National Institute of Neurological Disorders and Stroke |
Tel:
(800) 352-9424 |
An agency of the US government and component of the National Institutes of Health and the US Public Health Service, and a leading supporter of biomedical research and disorders of the brain and nervous system. |
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E-mail: N/A Web site: www.ninds.nih.gov |
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National Maternal & Child Health Clearinghouse |
Tel:
(703) 821-8955 |
Disseminates information about maternal and child health across the United States. |
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E-mail: nmch@circsol.com Web site: www.nmchc.org |
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National Mental Health Association |
Tel:
(800) 969-6642 |
The National Mental Health Association provides information on and for children, youth and families about mental health and emotional disorders. |
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E-mail: nmhainfo@aol.com Web site: www.nmha.org |
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National Organization for Rare Disorders (NORD) |
Tel:
(800) 999-6673 |
NORD is a clearinghouse of information about rare disorders and members are able to be networked with those having same disorder for mutual support; fosters communication among rare disease voluntary agencies, government bodies, industry, scientific researchers, academic institutions, and concerned individuals; encourages and promotes research and education on rare disorders and Orphan Drugs. Publishes reports on rare disorders and "Orphan Disease Update" newsletter (3 issues/yr.). |
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E-mail: orphan@nord-rdb.com Web site: www.rarediseases.org |
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National Parent Network on Disabilities |
Tel:
(202) 463-2299 |
A parent and training information center which advocates for children, youth and adults with special needs and disabilities. |
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E-mail: npnd@cs.net Web site: www.npnd.org |
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Pacer Center, Inc. |
Tel:
(952) 838-9000 |
A Minnesota parent and training information center which offers programs for parents and students, as well as technical assistance to parent centers regionally and nationally. |
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E-mail: pacer@pacer.org Web site: www.pacer.org |
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PEAK Parent Center, Inc., Integration Project |
Tel:
(719) 531-9400 |
The mission of Peak Parent Center is to ensure that children, youth and adults with disabilities lead rich, active lives and participate as full members of their schools and communities by providing training, information and technical assistance, including best practices, to families and the professionals working with them. PEAK has several useful inclusion resources for sale. |
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E-mail: info@peakparent.org Web site: www.peakparent.org |
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Prentke Romich |
Tel:
(800) 262-1933 |
The Prentke Romich Company manufactures products that help people with disabilities to communicate and to gain independence. The two main product lines are augmentative communication devices and computer access equipment. |
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E-mail: sales@prentrom.com Web site: www.prentrom.com |
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RJ Cooper & Associates |
Tel:
(800) RJCooper |
RJ Cooper makes products for persons with special needs, including special software and hardware adaptations. |
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E-mail: info@rjcooper.com Web site: www.rjcooper.com |
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Sibling Support Project |
Tel:
(206) 368-4911 |
In order to increase the availability of peer support for brothers and sisters of people with special needs, Sibling Support Project creates awareness and curriculum materials, provides training and technical assistance, conducts workshops, and maintains a database of existing sibling programs. |
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E-mail: dmeyer@chmc.org Web site: www.chmc.org/departmt/sibsupp |
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SNAP -Special Needs Advocate for Parents |
Tel:
(310) 201-9614 |
Provides information, education, advocacy and referrals to families with special needs children of all ages and disabilities. Provides special needs estate planning via seminars and private consultations with certified special needs advocates. |
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E-mail: info@snapinfo.org Web site: www.snapinfo.org |
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Special Needs Project World Wide |
Tel:
(800) 333-6867 |
Specialty book seller. Catalog offers over four thousand books on special needs topics from all publishers. |
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E-mail: books@specialneeds.com Web site: www.specialneeds.com |
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Spectrum Institute - Disability, Abuse and Personal Rights Project
P.O. Box 65756 |
Tel:
(310) 391-2420 |
Produces annual national conference on abuse and persons with disabilities. Conducts research and produces reports on abuse and disability. Provides training and produces training materials for both abuse response service providers and disability related service providers. Provides advocacy services for persons with disabilities related to civil rights and abuse-related issues. |
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E-mail: N/A Web site: N/A |
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Sunshine Foundation |
Tel:
(215) 632-8972 |
The Sunshine Foundation grants wishes of children 3 to 21 with chronic or terminal illness. |
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E-mail: philasun@uscom.com Web site: www.sunshinefoundation.org |
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TASH: The Association for Persons with Severe Disability |
Tel:
(410) 828-8274 |
An international advocacy association of people with disabilities, their family members, other advocates and people who work in the disability field. TASH actively promotes full inclusion and participation of persons with disabilities in all aspects of life. |
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E-mail: info@tash.org Web site: www.tash.org |
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Travelin' Talk |
Tel:
(913) 552-6770 |
A network of individuals and organizations who assist travelers with disabilities. |
| E-mail: trvlntlk@aol.com Web site: www.travelintalk.net | ||
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The resource list above is for your information; it is not necessarily comprehensive and is not an endorsement of the services offered. If you find that any of the information is incorrect, if you would like to offer any feedback, or if you know of additional resources that may be helpful to include in the future, please let us know. You can call us at (415) 920-5040, e-mail us at info@supportforfamilies.org or write to us c/o Open Gate, 2601 Mission Street, 3rd Floor, San Francisco, CA 94110. Thank you to all the agencies who completed our Request for Information form and thank you as well to community resource databases such as Helplink and the San Francisco Public Library Community Connection for lending valuable assistance. |
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A-J |
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