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2000 RESOURCE GUIDE

Section 3. National Resources (K-Z)
Last updated: Friday, October 24, 2003 2:13 PM

Agency Name
& Address
Contact
Information
Program
Description

KidAbility
65 Park & Shop Plaza
Elk Grove, IL 60007

Tel: (800) 333-8087
TDD: N/A
Fax: (847) 758-8699

Kidability is a specialty store for infants and children with disabilities. They have clothing, toys, shoes, utensils, preemie clothes and bereavement products.

E-mail: kidability@aol.com     Web site: www.kidability.com

Learning Disabilities Association of America
4156 Library Rd.
Pittsburgh, PA 15234

Tel: (412) 341-1515
TDD: N/A
Fax: (412) 344-0224

LDA is a national non-profit organization providing information and referral to individuals concerning learning disabilities. A membership organization with 500 local chapters throughout the country, they place people in touch with local support groups, help with schools, etc. Free material provided upon request.

E-mail: ldanatl@usaor.net     Web site: www.ldanatl.org

Mayer-Johnson Co
P.O. Box 1579
Solana Beach, CA 92075

Tel: (619) 550-0084
TDD: N/A
Fax: (619) 550-0449

Manufacturer of augmentative communication products.

E-mail: N/A             Web site: www.mayer-johnson.com

Miles for Kids in Need
P.O. Box 619688-MD 5400
Dallas-Ft Worth Airport, TX 75261

Tel: (817) 963-8118
TDD: N/A
Fax: (817) 931-6890

Provides air transportation for children needing medical treatment or a wish fulfilled.

E-mail: N/A            Web site: N/A

Mobility International USA
P.O. Box 10767
Eugene, OR 97440

Tel: (541) 343-1284
TDD: (541) 343-6812
Fax: (541) 343-6812

Mobility International USA (MIUSA) is a nonprofit organization providing international exchange and leadership development opportunities for people with disabilities. The National Clearinghouse on Disability and Exchange advises exchange programs on how to accommodate participants with disabilities. The Clearinghouse also provides information and referral to disabled individuals interested in international programs.

E-mail: info@miusa.org     Web site: www.miusa.org

National Alliance for the Mentally Ill (NAMI)
200 No. Glebe Rd., Suite 1015
Arlington, VA 22203-3754

Tel: (800) 950-6264
TDD: (703) 516-7227
Fax: (703) 524-9094

The National Alliance for the Mentally Ill (NAMI) is a grassroots self-help, support and advocacy organization dedicated to improving the lives of people with severe mental illness. Most NAMI members are individuals and the families and friends of people who suffer from severe illnesses such as schizophrenia, clinical depression, manic depression, panic and obsessive-compulsive disorders.

E-mail: helpline@nami.org     Web site: www.nami.org

National Association of Private Schools for Exceptional Children (NAPSEC)
1522 K St. NW, Ste 1032 Washington, DC 20005

Tel: (202) 408-3338
TDD: N/A
Fax: (202) 408-3340

Non-profit association whose mission is to promote excellence in educational opportunities for children with disabilities by enhancing the role of private special education. Provides a Non-public school referral service and publishes a directory.

E-mail: napsec@aol.com     Web site: www.napsec.com

National Association of State Directors of Special Education (NASDSE)
1800 Diagonal Rd., Suite 320
Alexandria, VA 22314

Tel: (703) 519-3800
TDD: (703) 519-7008
Fax: (703) 519-3808

NASDSE is a not-for-profit corporation that promotes and supports education programs for students with disabilities.

E-mail: N/A              Web site: N/A

National Center for Learning Disabilities
381 Park Ave. South, #1401
New York, NY 10016

Tel: (888) 575-7373
TDD: N/A
Fax: (212) 545-9665

National non-profit organization that offers information and referral, conducts educational programs, raises public awareness of learning disabilities and advocates for improved legislation and services for those with learning disabilities.

E-mail: N/A              Web site: www.ncld.org

National Center for Youth with Disabilities
University of Minnesota, Box 721
Minneapolis, MN 55455

Tel: (612) 626-2134
TDD: (612) 626-3939
Fax: N/A

Information, policy and dissemination center for youth with disabilities.

E-mail: N/A              Web site: www.peds.umn.edu/Centers/ihd/ncyd.html

National Coalition on Abuse and Disability
P.O. Box T
Culver City, CA 90230-0090

Tel: (310) 390-2420
TDD: N/A
Fax: (310) 390-6994

Provides quarterly newsletter. Members' work includes or specializes in abuse and neglect of children with disabilities.

E-mail: N/A              Web site: N/A

National Down Syndrome Society
666 Broadway
New York, NY 10021

Tel: (800) 221-4602
TDD: N/A
Fax: (212) 979-2873

NDSS was founded in 1977 with the three-fold mission of education, research and advocacy. They work to increase public awareness about Down syndrome.

E-mail: info@ndss.org     Web site: www.ndss.org

National Fathers' Network (NFN)
16120 NE Eighth St.
Bellevue, WA 98008

Tel: (425) 747-4004
TDD: (425) 747-1069
Fax: N/A

A national program committed to fathers and their children with chronic illness and developmental disabilities. Services include technical assistance, newsletter, training, and publications.

E-mail: jmay@fathersnetwork.org     Web site: www.fathersnetwork.org

National Foundation of Dentistry for the Handicapped
1800 Glenarm Place, Suite 500
Denver, CO 80202

Tel: (800) 366-3331
TDD: N/A
Fax: N/A

Matches patients with dentists who donate their time. In California, see California Donated Dentistry Services.

E-mail: N/A              Web site: N/A

National Health Information Center (NHIC)
P.O. Box 1133
Washington, DC 20013-1133

Tel: (800) 336-4797
TDD: N/A
Fax: (301) 984-4256

Information and referral regarding health issues.

E-mail: nhicinfo@health.org     Web site: www.health.gov/nhic

National Information Center for Children & Youth with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC20013-1492

Tel: (800) 695-0285
TDD: (800) 695-0285
Fax: (202) 884-8441

NICHCY is a national information center that provides information on disabilities and disability-related issues for families, educators and other professionals with a special focus on children and youth (birth to age 22).

E-mail: nichcy@aed.org     Web site: www.nichcy.org

National Institute of Neurological Disorders and Stroke
9000 Rockville Pike, B 31-8A 16
Bethesda, MD 20892

Tel: (800) 352-9424
TDD: N/A
Fax: (301) 402-2186

An agency of the US government and component of the National Institutes of Health and the US Public Health Service, and a leading supporter of biomedical research and disorders of the brain and nervous system.

E-mail: N/A              Web site: www.ninds.nih.gov

National Maternal & Child Health Clearinghouse
8201 Greensborough Dr., #600
McLean, VA 22102

Tel: (703) 821-8955
TDD: N/A
Fax: N/A

Disseminates information about maternal and child health across the United States.

E-mail: nmch@circsol.com     Web site: www.nmchc.org

National Mental Health Association
1021 Prince St.
Alexandria, VA 22314-2971

Tel: (800) 969-6642
TDD: N/A
Fax: (703) 684-5968

The National Mental Health Association provides information on and for children, youth and families about mental health and emotional disorders.

E-mail: nmhainfo@aol.com     Web site: www.nmha.org

National Organization for Rare Disorders (NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923

Tel: (800) 999-6673
TDD: (203) 746-6927
Fax: (203) 746-6481

NORD is a clearinghouse of information about rare disorders and members are able to be networked with those having same disorder for mutual support; fosters communication among rare disease voluntary agencies, government bodies, industry, scientific researchers, academic institutions, and concerned individuals; encourages and promotes research and education on rare disorders and Orphan Drugs. Publishes reports on rare disorders and "Orphan Disease Update" newsletter (3 issues/yr.).

E-mail: orphan@nord-rdb.com     Web site: www.rarediseases.org

National Parent Network on Disabilities
1130-17th St. NW, Suite 400
Washington, DC 20036

Tel: (202) 463-2299
TDD: N/A
Fax: (202) 463-9403

A parent and training information center which advocates for children, youth and adults with special needs and disabilities.

E-mail: npnd@cs.net     Web site: www.npnd.org

Pacer Center, Inc.
8161 Normandale Blvd.
Minneapolis, MN 55437-1044

Tel: (952) 838-9000
TTY: (952) 838-0190
Fax: (952) 838-0199

A Minnesota parent and training information center which offers programs for parents and students, as well as technical assistance to parent centers regionally and nationally.

E-mail: pacer@pacer.org     Web site: www.pacer.org

PEAK Parent Center, Inc., Integration Project
918 Crown Ridge Dr.
Colorado Springs, CO 80918

Tel: (719) 531-9400
TDD: (719) 531-9403
Fax: (719) 531-9452

The mission of Peak Parent Center is to ensure that children, youth and adults with disabilities lead rich, active lives and participate as full members of their schools and communities by providing training, information and technical assistance, including best practices, to families and the professionals working with them. PEAK has several useful inclusion resources for sale.

E-mail: info@peakparent.org     Web site: www.peakparent.org

Prentke Romich
1022 Heyl Rd.
Wooster, OH 44691

Tel: (800) 262-1933
TDD: N/A
Fax: (330) 263-4829

The Prentke Romich Company manufactures products that help people with disabilities to communicate and to gain independence. The two main product lines are augmentative communication devices and computer access equipment.

E-mail: sales@prentrom.com     Web site: www.prentrom.com

RJ Cooper & Associates
24843 Del Prado, Suite 283
Dana Point CA 92629

Tel: (800) RJCooper
TDD: N/A
Fax: (949) 240-9785

RJ Cooper makes products for persons with special needs, including special software and hardware adaptations.

E-mail: info@rjcooper.com     Web site: www.rjcooper.com

Sibling Support Project
P.O. Box 5371, CL-09
Seattle, WA 98105-0371

Tel: (206) 368-4911
TDD: N/A
Fax: (206) 368-4816

In order to increase the availability of peer support for brothers and sisters of people with special needs, Sibling Support Project creates awareness and curriculum materials, provides training and technical assistance, conducts workshops, and maintains a database of existing sibling programs.

E-mail: dmeyer@chmc.org     Web site: www.chmc.org/departmt/sibsupp

SNAP -Special Needs Advocate for Parents
1801 Ave. of the Stars #401
Century City, CA 90067

Tel: (310) 201-9614
TDD: N/A
Fax: (310) 201-9889

Provides information, education, advocacy and referrals to families with special needs children of all ages and disabilities. Provides special needs estate planning via seminars and private consultations with certified special needs advocates.

E-mail: info@snapinfo.org     Web site: www.snapinfo.org

Special Needs Project World Wide
3463 State St., Suite 282
Santa Barbara, CA 93105

Tel: (800) 333-6867
TDD: (800) 333-6867
Fax: (805) 962-5087

Specialty book seller. Catalog offers over four thousand books on special needs topics from all publishers.

E-mail: books@specialneeds.com      Web site: www.specialneeds.com

Spectrum Institute - Disability, Abuse and Personal Rights Project P.O. Box 65756
Los Angeles, CA 90065

Tel: (310) 391-2420
TDD: N/A
Fax: N/A

Produces annual national conference on abuse and persons with disabilities. Conducts research and produces reports on abuse and disability. Provides training and produces training materials for both abuse response service providers and disability related service providers. Provides advocacy services for persons with disabilities related to civil rights and abuse-related issues.

E-mail: N/A              Web site: N/A

Sunshine Foundation
2001 Bridge St.
Philadelphia, PA 19124

Tel: (215) 632-8972
TDD: N/A
Fax: (215) 535-8397

The Sunshine Foundation grants wishes of children 3 to 21 with chronic or terminal illness.

E-mail: philasun@uscom.com     Web site: www.sunshinefoundation.org

TASH: The Association for Persons with Severe Disability
29 W. Susquehanna Ave., # 210
Baltimore, MD 21204

Tel: (410) 828-8274
TDD: N/A
Fax: (410) 828-1306

An international advocacy association of people with disabilities, their family members, other advocates and people who work in the disability field. TASH actively promotes full inclusion and participation of persons with disabilities in all aspects of life.

E-mail: info@tash.org      Web site: www.tash.org

Travelin' Talk
P.O. Box 3534
Clarksville, I N 37043-3534

Tel: (913) 552-6770
TDD: N/A
Fax: (913) 552-1182

A network of individuals and organizations who assist travelers with disabilities.

E-mail: trvlntlk@aol.com      Web site: www.travelintalk.net

The resource list above is for your information; it is not necessarily comprehensive and is not an endorsement of the services offered. If you find that any of the information is incorrect, if you would like to offer any feedback, or if you know of additional resources that may be helpful to include in the future, please let us know. You can call us at (415) 920-5040, e-mail us at info@supportforfamilies.org or write to us c/o Open Gate, 2601 Mission Street, 3rd Floor, San Francisco, CA 94110. Thank you to all the agencies who completed our Request for Information form and thank you as well to community resource databases such as Helplink and the San Francisco Public Library Community Connection for lending valuable assistance.
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