Internet Resource Guide
Finding Information on the Internet
There is an incredible amount of information on the internet for families of children with disabilities. This guide is an attempt to bring together a selection of some of the better resources on the Internet, organize them in an accessible manner, and provide brief annotations.
This page is designed to provide a list of internet sites that are a good place to begin when looking for information affecting children with disabilities.
There are several federal laws that have been enacted to protect the rights of individuals with disabilities, including children. State laws are also in place to ensure protection of the those rights, and may govern if they provide greater protection than federal laws. Although this website does not discuss states laws, families can learn more about the laws in their states by contacting a local PTI (parent training and information center).
Some of the best websites that feature resources for families of children with disabilities have been created by parents or caregivers. The sites included on this page are those that represent the efforts of families or parent groups or that can connect families with support networks.
These resources fall into two general categories. The first group lists websites that will provide access to information about a very broad range of disabilities, including rare disorders. The second category includes sites that focus on specific disabilities.
Under IDEA (the Individual with Disabilities Education Act), children with disabilities are entitled to a "free and appropriate public education" in "the least restrictive environment." The sites listed here can help you understand your child's rights, provide strategies for successful learning and link families to advocacy organizations. Information about inclusion is also available on this page.
There are hundreds of health-related internet sites. The ones on this page provide links to general health information, to medical databases, to information about rare diseases and disorders and to sites that can educate you on drugs and medication.
This page focuses on sites that provide information about mental, behavioral and conduct disorders, and includes links to mental health family support and advocacy organizations.
Transition to Adulthood
As children with disabilities approach adulthood, the issues of higher education, employment and independent living arise. Sites on this page provide information and support for families of youth with disabilities.